Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Spinal Cord Disorders, Spinal Cord Injuries. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. Provides a summer camp scholarships to children affected by epilepsy and in financial need. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Browse the GARD list of rare diseases to find topics of interest. Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. Educational scholarships awarded to individuals who have been affected by cancer, either by their own diagnosis or that of a loved one. Disability Requiring Assistive Technology, Mobility Disability, Kellys Angels aims to restore fun and laughter to the lives of children who have lost a parent, primary caregiver or sibling to cancer, by providing grants for the activity of the childs choosing, Cancer - All in a loved one, Parent, Family Member, Loved One With Cancer, Terminal Illnesses. Program awards an educational scholarships to a student who lives with the ongoing challenges and complexities of hydrocephalus pursuing higher education. Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. Child with a parent or sibling who has or had cancer, Bereavement. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Scholarship for students who are blind or visually impaired ages 10 to 18 years old to attend Space Camp/SCIVIS with a paid full tuition and partial or full travel expenses. Janet Woodcock, M.D. Program awards scholarships to students who have a disability and are enrolled in undergraduate or graduate studies in an accredited college or university. Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. Program offers scholarship to existing licensed individuals who have become disabled and wish to return to flying. The application deadline is August 28 at 3 p.m. CT. An educational scholarship for students attending a California college/university with a learning disability in math. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Grants provided for children and adults with Cystic Fibrosis for recreational activities that help with physical as well as social and emotional health. Addiction, Alcohol dependence, Chemical Dependency or Substance Abuse. Learning Disability, Dyslexia, Speech and language Delays or Impairments. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. They must be enrolled full time sophomores or juniors at the time of application. Learning Disability, Dyslexia, Dyscalculia, Dysgraphia. Program offers single year and multi year educational scholarships awards to students with cystic fibrosis. Programs are listed in alphabetical order by program name. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. A membership scholarship to the turner Syndrome Society for women diagnosed with Turner Syndrome. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Foundation for Rare Diseases. Scholarships at selected colleges, universities, and community colleges for students with spinal cord injury. Please return then to view the updated Eligibility and Awards for the upcoming academic year! Rare Diseases . Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Provides scholarships to students with disabilities. Lupus, Systemic Lupus Erythematosus (SLE). Program awards scholarships for the legally blind attending a technical college. Program awards a $1000 educational scholarship to individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism) and wish to continue their education. Program offers a scholarship to students with a disability attending the University of Utah. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Mary graduated from Wayne State University with a degree in journalism. Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. An educational scholarship for a surviving spouse or child of a deceased service member from a service-related death or a veteran with a 100% service-connected disability. Courtney is on the left, while Dr. Li is on the right. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program awards a scholarship to young cancer survivors. Mental Illnesses, ADHD, Bi-Polar Disorder, Depression, Eating Disorders, Posttraumatic Stress Disorder, Schizophrenia. Program will offer 10 scholarships to outstanding students living with GI disease, pursuing their higher education goals. Program provides scholarships to assist people living with cystic fibrosis and those students who are the children of parents with cystic fibrosis (living or deceased) who are pursuing undergraduate and graduate degrees. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. An educational scholarship for students diagnosed with a brain tumor prior to the age of 18. Hemophilia - Inhibitors, Hemophilia, Blood Disorders, Von Willebrand Disease. Scholarship America will manage the scholarship application process, selection process and distribution of funds independent of Horizon Therapeutics input. Ten grants are awarded to students with Down Syndrome 18 years of age or older. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). Program awards a scholarship to a person diagnosed with Hemophilia A/B (and symptomatic carriers), Von Willebrand Disease or rare factor deficiencies pursuing higher education. The number of scholarships given varies. Applications accepted from early December - early May annually. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. A college scholarship awarded to students who are considered legally blind. Provides academic scholarships to assist students diagnosed with Cystic Fibrosis pursuing undergraduate or graduate degrees. Childhood Cancer, Cancers, Child with a parent or sibling who has or had cancer, Cancer - All in a loved one. "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . Among the many new orphan treatments in 2020, several are particularly noteworthy, including a new drug to treat certain people with Hutchinson-Gilford Progeria Syndrome and . Program awards scholarships to children and young adults living with sickle cell/and or thalassemia. "NEMSN's Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. Program offers scholarships created to assist students who either have hemophilia or a similar bleeding disorder, or have a family member with a bleeding disorder. by Mary Chapman August 19, 2020. A scholarship program for students ages 17-24 who lost a parent(s) from cancer. Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. | Collapse All Expand All AAAI Scholarship AAHD Frederick J. Krause Scholarship on Health and Disability AbbVie Cystic Fibrosis Scholarship Annual Traumatic Brain Injury Scholarship Baer Reintegration Scholarship Program offers annual scholarship to a high school senior accepted into a Learning program at the University of the Ozarks, Arkansas. Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). Veterans - Disability/Injured-Families, Victims of 9/11 and/or family member. Individuals may apply for the 2020#RAREisScholarship Fund throughRareScholarship.org. Chronic, Serious or Life Threatening Illnesses. All applications are de-identified prior to review, and will be evaluated using a scoring rubric by a panel of Sanofi employees who are familiar with the rare disease community but do not currently work in the space. Foundation offers memorial scholarships for students who are burn survivors, have been treated for burn/soft tissue injuries, or suffer from frost-bite, pursuing higher education. Shes won a Society of Professional Journalists award for outstanding reporting. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. A scholarship for a college/university student with a disability to receive assistive technology software or hardware up to $500. Children with a parent wounded, disabled or killed in military service, Military related, Disabled - Veteran. An education scholarship for active duty or honorably discharged U.S. veterans. Program provides scholarships to members of LPA who have a medically diagnosed form of dwarfism, immediate family members of dwarfs who are also paid members of LPA and people with dwarfism who are not members of LPA. March 15, 2023 - Scholarship Application Window Opens. An educational scholarship for students who are survivors of cancer or have an immediate family member that is a cancer survivor, or has passed away due to cancer. Programs offers scholarship grants to children whose parent has been seriously or fatally injured in a work-related accident. Program provides partial and full scholarships, and financial assistance to campers in need. Program awards a scholarship to the immediate family member of a person with a bleeding disorder. Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Awardees will be notified in October. Program awards a scholarship to student a with significant bilateral hearing loss pursuing higher education at an accredited non-profit school. Provides a scholarship to individuals who have struggled with mental health challenges or substance abuse. Program awards scholarship to individuals affected by childhood hemiplegia , hemiparesis, or pediatric stroke to further their education. Applicants of all races, ethnicities, genders, and sexual orientations are encouraged to apply. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Learn More About the Grant. Program provides financial assistance for educational tuition and related expenses for pre-kidney transplant patients whom are or will be undergoing dialysis treatments. Rare Disease Day 2020. An educational scholarship for women diagnosed with Turner Syndrome and who are current members of the Turner Syndrome Society of the United States. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. Program awards scholarships to students who are legally blind pursuing higher education. Program awards scholarships for children who've lost a parent to breast cancer. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. We outline how this translation between rare and common disease vocabularies can be tailored to fit different applications. College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. Program offers scholarships to individuals who have been affected by mesothelioma. Scholarships for students with learning differences. Program provides financial assistance to individuals with hemophilia for GED certification. 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